The Genetics Podcast

EP 34: 1 in 70 million - conversation with rare disease advocate David Rose

April 29th, 2020  •  28 mins 28 secs  •  Download (53.4 MB)  •  Link with Timestamp

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David Rose is a rare disease advocate, an ambassador for Great Ormond Street Hospital, and part of the team at Rare Revolution magazine, an online magazine dedicated to rare disease patients and their voices. He’s the only known person in the UK to have occipital horn syndrome and he tells us what it’s like to live with a rare disease - and why we should all be more aware of rare disease as a whole.